This survey of people with Gilbert’s Syndrome is the first to ask people with Gilbert’s Syndrome symptoms what they are experiencing and what is important to them. Here’s your opportunity to join this survey and add to the growing body of evidence from people with Gilbert’s Syndrome symptoms.
This survey is really important for the development of tailored information and support for people with Gilbert’s Syndrome symptoms. Thank you for your help in joining the many people who have already taken part.
The top three concerns that people with Gilbert’s Syndrome symptoms say they have:
- 83% of respondents experience tiredness or exhaustion.
- 69% have ‘brain fog’
- 49% feel anxious
29% of people wanted help with nausea, 25% with the menopause, and 23% abdominal pain. Jaundice was a concern for just 11% of people.
Looking at the other responses, it’s clear that tiredness and inability to focus, plus mood swings, are part and parcel of the symptoms that are top priority for people with Gilbert’s Syndrome.
The top areas where people with Gilbert’s Syndrome symptoms have asked for support are:
Food and drink/nutrition (49%); supplements(40%); exercise(40%).
Other issues include talking to health professionals and other medication / health conditions – at 11% each.
These results will directly impact the support this website can offer people who have Gilbert’s Syndrome symptoms. Importantly by joining this survey everyone can help each other understand that they are not alone with their Gilbert’s Syndrome symptoms. Thank you for taking part, and here’s that link again if you haven’t already!
If you want to stay up to date with the latest results, support and news for people with Gilbert’s Syndrome sign up to the newsletter here. You’ll also get a FREE download of questions to ask your Doctor or health professional.